About My Campaign
My daughter was 5 days old when we were told she had PKU. This news rocked us, no one we knew had ever heard of this rare IEM. From that point on it was our mission to learn and understand this metabolic disorder in order for us as a family to support our little girl. I am participating in the Great Protein Challenge to raise awareness and to help people to understand what it is and how it affects many different people. I hope it helps families like ours in the future to not be in fear but to embrace what makes our little ones special.