About My Campaign

We are participating in the great protein challenge because we want to generate awareness of the challenges that children, families and adults face with lifelong restriction of dietary protein in PKU and many other metabolic disorders. We want people to be aware that some people are only able to tolerate less protein than an egg (6g) and have to make their own special food and be vigilant with label reading. This can be very challenging and we want people to develop an awareness and understanding of how tricky this can be without appropriate supports, treatment and funding.

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