Join the rare group of Australians living with PKU, and strive to eat under 10 grams of protein to help raise awareness and funds during the Great Protein Challenge in support of people living with rare genetic metabolic (protein) disorders.
Host an Event
Host an event and get the whole office invovled. Participants make a small donation to your team to attend. office invovled. Participants make a small donation to your team to attend.
Meal Plans
What are you going to eat on your PLAY Date? View our Meal Plans that help make your preparation super easy.
How your $ help
Your contribution helps MDDA provide
wellbeing support and services for
individuals with IEMs and their families.
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Be Inspired
See what low protein meals others are eating. #lowpro
🌟 Good Luck to Our New School Starters and Returning Students! 🌟
Starting or heading back to school is such an exciting milestone—especially for children with Inborn Errors of Metabolism (IEM). To all our little champions, we’re cheering you on as you take on new adventures, make new friends, and continue to shine! 🌈✨
For parents and caregivers, preparation is key to ensuring a smooth transition and supporting your child’s well-being. Here are some tips from our comprehensive online resource to help you feel ready! You can access our full set of school starter tips by following the link here https://mdda.org.au/school-starters/.
We’re here to help—if there’s anything you need on your journey, please don’t hesitate to reach out! 💙...
25 for 25: Make This Christmas Truly Special! 🎄 This festive season, we’re embracing the magic of 25 with our 25 Days of Christmas campaign! Together, we’re aiming to raise $25,000 by December 25th to support families living with Inborn Errors of Protein Metabolism (IEpM). Did you know? Each year, approximately 25 babies are born in Australia with an IEM. That’s 25 little lives, 25 families, and countless moments where your support can make all the difference. Here’s how you can help: 🎁 Donate $25 (or more!)—every dollar counts via our https://www.givenow.com.au/mdda-appeal 🎁 Share this campaign with your friends, family, and community. 🎁 Join us in spreading awareness this holiday season. Every $25 raised brings connection, care, and support to those families. Together, we can ensure no one living with an IEM faces the future alone.
Let’s make the 25 Days of Christmas a time of generosity, joy, and real impact. 💛 Donate today and help us hit our $25,000 goal by December 25th! 🌟...
🌟 A Huge Thank You to Our Amazing Sponsors and Donors! 🌟
We are incredibly grateful to all our sponsors who made the 2024 MDDA National Family Retreat an unforgettable experience for everyone involved. Your support has allowed us to bring the IEM community together, share knowledge, and create lasting memories for those who attended.
A special shoutout to our sponsors: BioMarin, Cortex Health, iECURE, Menarini, Nutricia, PTC Therapeutics, Vitaflo
We also want to recognise the following companies who provided delicious treats: Well and Good, OMG Donuts, Liberate Foods, Sweet William Chocolate, Cheer Cheese, Syndian, Bite Me Fine Foods
A huge shout out to Pauline PKUNana and The Grand Hotel Warrandyte for the delicious low protein menu, preprepared with care and love!
Thank you for being part of our mission to support families living with IEMs. We couldn’t have done this without your generosity and commitment!
Rare Disease Day happens every year on February 28 (or 29 in leap years)—the rarest day of all. For MDDA and the IEM community, Rare Disease Day is a chance to share our experiences, teach others about living with a rare disease, and talk to policy makers. It creates a feeling of togetherness and common goals as we go through life in the IEM community. Let’s stand together on Rare Disease Day, raising awareness, pushing for change, and supporting each other on our special journey. This day reminds us that even though globally each rare disease affects only a small number of people, together they impact over 300 million individuals worldwide. Rare Disease Day brings hope and strength to many of us. It shows that our challenges are recognised, and our efforts to speak up can make a real difference. This day sheds light on the unique obstacles we face, from limited treatment choices to the complexities of managing our health. By spreading awareness, Rare Disease Day helps us get more funding for research, find new solutions, and improve access to the right healthcare. Rare Disease Day 2024 🤝 🌐💚 Share your story, spread the word. Let’s make Rare Disease Day a day that transforms lives! 🚀 #RareDiseaseDay #UnityInRare #MDDA...
MDDA raise awareness of inherited metabolic disorders like PKU and other rare IEMs, we build programs and develop resources for the newly diagnosed infants through all life stages.
Our cause relies on the kindness and generosity of donors to enable us to provide essential resources and support to those who need it most. Every dollar donated goes directly toward funding our programs and initiatives, allowing us to create positive change in the IEM community.
As the last day of the financial year we are reaching out to request your generous contributions to help us continue making a difference. All donations over $2 are tax deductible this financial year.
Donations to support our mission can be made here https://mdda.org.au/donate/ Like to know more about the care and support we provide visit us at https://mdda.org.au/...
