Test page

How #LowPro
Can You Go?

Join the rare group of Australians living with PKU, and strive to eat under 10 grams of protein to help raise awareness and funds during the Great Protein Challenge in support of people living with rare genetic metabolic (protein) disorders.

Host an Event

Host an event and get the whole office invovled. Participants make a small donation to your team to attend. office invovled. Participants make a small donation to your team to attend.

Meal Plans

What are you going to eat on your PLAY Date? View our Meal Plans that help make your preparation super easy.

How your $ help

Your contribution helps MDDA provide
wellbeing support and services for
individuals with IEMs and their families.

Heading

Make sure you convert the containing, reusable block – to a regular block before modifying this content.

Heading

Make sure you convert the containing, reusable block – to a regular block before modifying this content.

Heading

Make sure you convert the containing, reusable block – to a regular block before modifying this content.

Be Inspired

See what low protein meals others are eating.
#lowpro

MDDA raise awareness of inherited metabolic disorders like PKU and other rare IEMs, we build programs and develop resources for the newly diagnosed infants through all life stages.

Our cause relies on the kindness and generosity of donors to enable us to provide essential resources and support to those who need it most. Every dollar donated goes directly toward funding our programs and initiatives, allowing us to create positive change in the IEM community.

As the last day of the financial year we are reaching out to request your generous contributions to help us continue making a difference. All donations over $2 are tax deductible this financial year.

Donations to support our mission can be made here https://mdda.org.au/donate/
Like to know more about the care and support we provide visit us at https://mdda.org.au/
...

47 0

MDDA RETREAT REGISTRATIONS ARE NOW OPEN!

Our hallmark event of the year, the MDDA National Family Retreat brings the IEM community together for a weekend of fun, kids & teens club, time to catch up with friends, make new friends, learn new things, great food and so much more! Register here mdda.org.au/retreat

We have a comprehensive retreat website where you will find everything you need to know about the weekend. How to register, great discounted retreat and accommodation packages, travel info etc. Numbers are strictly limited and room availabilities if extending will fill up fast – so don’t delay, secure your spot today!

If you have any questions about the event feel free to email [email protected]
...

18 0

Happy Mother’s Day to all the wonderful IEM Mums!

Today we are celebrating all of our IEM Mums who support and love us every day! Thank you for everything that you do!

A big hug to all our Mum’s this Mothers Day!
...

14 0

Happy Easter from all of us at MDDA!

We hope that you are enjoying the long weekend and spending quality time with family and friends! We hope that you all got a visit from the Easter Bunny and received some delicious LowPro chocolate.

Share with us your LowPro Easter Inspo & Hacks!
...

12 0

BREAKING NEWS - An important win for the Australian PKU Community!

The Metabolic Dietary Disorders Association (MDDA) is excited to share the long-awaited news that as of 1 April 2023, Kuvan (sapropterin dihydrochloride) is now available on the Pharmaceutical Benefits Scheme (PBS) for the treatment of sapropterin-responsive adults living with hyperphenylalaninemia (HPA) due to phenylketonuria (PKU)! This follows the positive recommendation from the Pharmaceutical Benefits Advisory Committee (PBAC) in July 2022, which found that “sapropterin provides, for some patients, a significant improvement in efficacy over a Phe-restricted diet alone” and acknowledging “there was a high clinical need in a small patient population.”

To read our full statement visit our website (link in bio)
...

65 7

Returning for 2023….The Great Protein Challenge

Our community knows how to rally the troops when we need and now is the time! Spread the word… get your family, friends, boss, co-workers, neighbours, your barista, anyone…..encourage them to get involved and PLEDGE or PLAY during May/June in The Great Protein Challenge 2023! This is our major fundraiser and awareness campaign of the year. Registrations are now open thegreatproteinchallenge.com.au
Who will take on the challenge to see if they can eat under 10g of protein for only one day.
All funds raised go towards programs, resources and research to support all Australians’ living with an IEM to lead a life of full potential.


#howlowprocanyougo #lowpro #thegreatproteinchallenge
...

22 0